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By Lukman Olabiyi
The Lupus Remedies Global Support Foundation has appealed to the Lagos State government to address the plights of patients suffering from Systemic Lupus Erythematosus (SLE), also known as Lupus.
The foundation’s director of organisation, Fausat Sanusi, made the appeal yesterday in Lagos, during an activity for the celebration of this year’s edition of ‘Invisible Disabilities Week’, with the theme: ‘Unmasking Lupus: Shinning light on Hope and Resilience.’
It was held at the secretariat of the Lagos Chambers of Commerce and Industry (LCCI), as part of efforts to give patients suffering from the ailment sense of relief and identity.
Sanusi, in her remarks, said she was determined to give hope to Lupus patients. She described the aliment as the Systemic Lupus Erythematosus (SLE), an autoimmune disease in which the immune system mistakenly attacks healthy tissues and organs, causing inflammation throughout the body.
She stated also that the symptoms of the disease vary and could affect many body systems, including the joints, skin, kidneys, blood cells, brain, heart, and lungs, often appearing in cycles of flare-ups and remission.
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Sanusi stated that her desire is to create a community whereby people suffering from Lupus would enjoy the best in life and contribute their quota to the development of the society.
“The reason for this awareness is to seek government’s support and sensitise the public that Lupus is not the end of the world for patients. I started the community four years ago with about 20 people living with Lupus.
“The community has grown tremendously now that we have about 5,000 people globally. We also have a physical detail of about 2,500 people from different hospitals within Lagos and some outside Lagos.”
Meanwhile, the General Manager for the Lagos State Office for Disability Affairs (LASODA) Adenike Lawal, said the state government is doing everything that is possible to identify with people with disabilities.
In his remarks, Dr. Olufemi Adelowo, said there’s lack of awareness about the disease. He described Lupus as a chronic disease that has no cure, but can be managed.
